Films And Podcasts

Resources

Films and Podcasts

Watch, listen, and engage with our films and podcasts, bringing Southall’s stories to life.

Resources

How can we ensure equitable access to genomic medicine?

Digital consent models, language barriers, and cultural differences are just a few factors that can exclude people from participating in genomic research. In this episode, our guests discuss these issues, and explore alternative methods such as in-person discussions and the use of trusted community figures to engage with their communities to increase awareness of genomic research. They also highlight the importance of communicating consent in ways that respect cultural dynamics, such as family involvement in decision-making.

Our host, Naimah Callachand is joined by Maili Raven-Adams, researcher in bioethics and policy at Nuffield Council on Bioethics, Niharika Batra, Community Projects Manager at Southall Community Alliance and Trupti Patel, Policy Manager at Genomics England.

“I think it is about finding language to involve people, and figure out how the benefits of them donating data can relate to them and their community”